Oops...forgot to include this one in the last post. This one just makes me smile!

I know we have been consumed with Maylee these past few weeks, and rightly so, but I thought I'd give an update on our other sweet kiddos.

We have been blessed with the best family.  Everyone has helped us with Ella, Hadley and Wiley.  Ella and Hadley have been on "The Tour of Family", and it is going to last for a little while longer.  They have been with grandparents, aunts, uncles and cousins.  They have been having a blast.  Maylee is keeping score, and wants to do everything they are getting to do.  Ella knows that Maylee is sick, and has been very concerned.  Both the girls have been troopers through all of this.

Wiley, sweet thing, has been champ.  Grandparents have been staying at a hotel near by, taking care of him.  He goes back and forth between the hospital and hotel.  We always say how he is such a good baby, and he proved himself once again.  

Here are some fun pics of them.

Maylee updates

As Blogger was having issues yesterday, I set up a CaringBridge site for new updates for Maylee. It is: http://www.caringbridge.org/visit/mayleemahone Thanks!

Leigh Anne

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Blogger has been having some issues, so sorry for the lag in updates.

Last night Maylee really was looking good. She was talking, making sense and worried that her sisters were going to come up the hospital and mess with all her presents, which she did not want! Also, the poor baby we share a curtain with has been crying a lot. Maylee made the comment that she couldn't sleep with that baby crying.

The cardiologist came by and said her heart looked great, and they didn't see any infection. He then proceeded to lean down, looked into maylee's eyes and said "Jesus loves you, don't be afraid, he is here with you, he died for our sins and then rose which Easter is all about, and that is what it is all about". He then prayed one of the most beautiful prayers I have ever heard. Matt's mom and I just looked at each other stunned, bc that has never happened. Mrs. Mahone put it best "That was really special", and it truly was.

The infectious/disease doctor that has been working with her, was extremely pleased with her progress.

She slept well last night. She has shown no signs of seizures. She is a little sore. They came and got her to do another scan which only took a few minutes. We haven't spoken with the doctors yet this morning.

I was told that they would probably monitor her for a little longer for seizure activity, then she would be moved back to a room.

Leigh Anne

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Maylee is now set up back in the PICU. She is doing well. She makes sense when she talks (huge praise) and is asking for water. She looks good, just a little swollen. They will now monitor her for seizures and other potential side effects. Thank you so much for all of your prayers and words of encouragement. Please continue praying. Thanks so much.

Leigh Anne

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She is in recovery, things went well. Will be moving to PICU soon.

Leigh Anne

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Update

The draining procedure went well. Surgeon said she should be a lot better as the pressure has been relieved. The abscess was the size of a golf ball. They are now putting in a central line for the antibiotics to go through, this will take about 30 minutes. Then she will be in recovery and then back to PICU. The will do an MRI tomorrow to monitor. They will culture the fluid they retrieved to determine the bacteria. I was encouraged after speaking with the surgeon. I still pray there is no infection along this long journey.

Leigh Anne

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PRAY

MRI detected an abscess in brain. About to have surgery to drain. She will be in in antibiotics for at least 6 weeks minimum. Please pray for this surgery and this while process. Pray that there will be no infection fr here on out. I feel like there as so many things to pray for, so please pray, just pray for our baby. I will update as I can.

Leigh Anne

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A bit of a rough night. Going down right now for MRI as an earlier opening became available. Praying it goes well.

Leigh Anne

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Tonight

Tonight Maylee's head has been hurting. She is sleeping but will cry out sporadically. Her fever came back but was given Motrin. Praying that she sleeps well tonight.

Leigh Anne

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Moved...

Up to her own room. I just back to the hospital and Maylee is taking a nap. She was up all day going hard and now she is worn out. The doctor came and said that she is doing really well. As well as she possibly could be at this point. So that was music to our ears!
She has her MRI at noon tomorrow and will be put under for that. So today was a really good day. Just praying all goes well tomorrow.

Good night

Maylee had a really good night last night. I haven't spoken with a dr this morning for medical conformation, but I can tell she is feeling so much better. She woke up about 2 am and was extremely talkative. I laid down several times only to her sweet little voice start chatting away. About 3am, I finally had to tell her I was going back to sleep. She was up early again watching a movie and giggling away. They finally let her start eating some crackers last night, and she has been eating away. She even got to talk to Ella, which I know was good for both of them. She only has complained a little of a few aches. When we first arrived at the hospital, they said the first 24-48 hours on the antibiotics were very critical. I feel like she is doing very well and hopefully that will be confirmed by the doctors today. Thank you again for all your sweet prayers, I know God is at work and we are trusting in His faithfulness.

Leigh Anne

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A little chat

Maylee just woke up (had been pretty groggy all day) and we had a nice little chat. She talked about how funny it was when a fish kept biting daddy at the lake this past summer. She saw balloons in her area and was thrilled. So great to hear her sweet laugh. She even posed for this picture. Sweet baby.

Maylee

We just got back to the hospital. Maylee will stir a little bit, but is still pretty out of it. The nurse said this is just part of the process and to be expected. Said it gets worse (as the antibiotics are killing off the infection) before it gets better. It is still a pretty critical time. She is in ICU and will probably be for at least another day, which is great b/c she has wonderful care here. They tried to do an MRI, but she only lasted twenty minutes so they are going to have to give anesthesia to do it. They have scheduled that for Thursday, so we are praying that comes back with good results.

Leigh Anne

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Maylee

A lot of you know that after a two week battle of fever and headaches (six dr appointments later), Maylee was admitted into Cook Children's in FW last night with bacterial spinal meningitis. It is not the meningoccocal meningitis which is the worst one. She had a pretty rough morning as they were having a hard time getting a vein. After many tries they decided to sedate her and do a pic line (a direct line to the heart through an artery). Looks like she will be on iv antibiotics for 2-3 weeks. She has slept a lot today as she was pretty sedated. Dr said common risks are hearing loss, stroke and seizures. She has not shown any of these signs. She has been stable and we pray she continues to stabilize without any complications. We cannot express our gratitude and appreciation for all your prayers, concerns and willingness to help in any way. Please just continue to pray for healing without any complications. Thank you prayer warriors. I'll try to post updates to this blog as often as I can.

Leigh Anne

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